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Disability Visibility: First-Person Stories from the Twenty-First Century Paperback – June 30, 2020
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One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act,
From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
- Print length336 pages
- LanguageEnglish
- PublisherVintage
- Publication dateJune 30, 2020
- Dimensions5.16 x 0.69 x 7.97 inches
- ISBN-101984899422
- ISBN-13978-1984899422
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Editorial Reviews
Review
“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune
“Shares perspectives that are too often missing from such decision-making about accessibility.” —The Washington Post
“Implicitly (and sometimes explicitly) makes the case for acknowledging and accommodating society’s overlooked population of disabled people.” —The New York Times Book Review
“An exemplary collection. . . . This month’s #RequiredReading.” —Ms. Magazine
“A raw, emotional collection, an investment in the power of storytelling to foster vibrant connections, and an unapologetic rejection of ‘internalized ableism’. . . . The 37 powerful stories in Disability Visibility reveal the depth of everyday courage and the extraordinary human capacity to find humor in the face of life’s adversities.” —Shelf Awareness
“Roughly 15 percent of people around the world have a disability, and yet their stories are often never told. Alice Wong’s anthology, Disability Visibility, brings their narratives front and center with the goal of showcasing the wide range of modern disability experiences. . . . Ultra-impressive.” —Shondaland, "10 Books Set to Become the New Feminist Classics"
“By its very nature, the disability community is incredibly intersectional and diverse, including people from all walks of life, backgrounds, and cultures. Disability Visibility reflects that diversity with its contributors, giving . . . a look at a wide range of experiences and types of disability.” —Book Riot
“Alice Wong . . . has long been at the forefront of the disability justice movement.” —Bitch Media, “17 Books Feminists Should Read in June”
“More resonant than ever. In this kaleidoscopic collection, Wong and her contributors provide not just a snapshot of what disability has meant in the past 20 years, but an urgent invitation to take that understanding forward. . . . A landmark resource for understanding disability.” —Autostraddle
“Diverse and poignant. . . . I was deeply moved by more pieces than I could name.” —Shir Kehila, Columbia Journal
“Every piece in Disability Visibility evokes . . . tenacity, some gut-wrenching and others inspiring. . . . The range of subjects is impressive: assistive technologies, carceral injustice, fashion, homophobia and heterosexism, medical care and medical abuse, organizing strategies, psychotherapy, racism, relationships, sex, and sexism.” —The Progressive
“Celebrates and documents the lived experiences, power, and culture of the disabled community.” —Morning Brew
“Wong’s discerning selections, bolstered by the activism that shines through, will educate and inspire readers.” —Kirkus Reviews
“These essays are the heart, the bones, and the blood of Disability Rights.”—Gaelynn Lea, musician and activist
“To Alice Wong, words like diversity and intersectionality aren’t just buzzwords. They are marching orders. Everyone should take in the wisdom woven throughout this book.” —W. Kamau Bell, host of United Shades of America
“A celebration and a source of deep education for many to bear witness (and feel seen by) the vastness of disabled stories, voices, and backgrounds.” —Jennifer Baker, editor of Everyday People: The Color of Life
“As a Deaf Asian American, it wasn’t until recent years that I started considering myself disabled. This is a very informed starting point for anyone who, like myself, would like to get a better understanding of disability as a massive and beautifully nuanced spectrum.” —Christine Sun Kim, artist
About the Author
Product details
- Publisher : Vintage (June 30, 2020)
- Language : English
- Paperback : 336 pages
- ISBN-10 : 1984899422
- ISBN-13 : 978-1984899422
- Item Weight : 8.4 ounces
- Dimensions : 5.16 x 0.69 x 7.97 inches
- Best Sellers Rank: #11,496 in Books (See Top 100 in Books)
- Customer Reviews:
About the author
Alice Wong is the Founder and Director of the Disability Visibility Project, an online community dedicated to creating, sharing, and amplifying disability media and culture.
Her latest book is an edited anthology, DISABILITY VISIBILITY: First-person stories from the 21st century, published by Vintage Books (June 30, 2020).
Website: DisabilityVisibilityProject.com
You can find her on Twitter: @SFdirewolf / @DisVisibility
Instagram: @Disability_Visibility
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Top reviews
Top reviews from the United States
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Alice Wong has brought together an incredible group of people with disabilities to tell their stories. She began this project because she wanted to hear more about the disabled experience from diverse, everyday folks.
So many times in our culture when we think of disability we think of Christopher Reeves in his wheelchair or Dustin Hoffman acting in Rainman. Much of what we see in our culture’s examples of disability are completely lacking in diversity. Not only that, but the examples are almost always visible, which is simply not always the case. Many are invisible and our society often invalidates them because of this.
Some of my favorite chapters include:
-Harriet McBryde Johnson who has a neuromuscular disease debates with a Princeton professor who believes she shouldn’t have been born.
-Jeremy Woody speaks to the challenges of being deaf in prison.
-Sky Cubacub describes how limited (and honestly ugly) current adaptive clothing is and how they are changing this.
-Keah Brown expresses the happiness and love in her life, even though society tells us that joy is impossible for disabled people.
-Shoshana Kessock, who has bipolar disorder finally gives herself permission to be healthier and take her medicine instead of feeling like she owes the world her manic creativity.
-Britney Wilson describes the perilous journey of NYC’s paratransit service.
This book shows such richness and joy and challenges and life in each person’s story. They are not gloom and doom like we are lead to believe is nonstop for them. It’s important for us to examine the biases we may hold against those that are differently abled.
This powerful book does exactly what the title says. It makes everyday disabled experiences more visible to the world. I cannot recommend this book enough. Please give this a read.
Reviewed in the United States on April 1, 2021
Alice Wong has brought together an incredible group of people with disabilities to tell their stories. She began this project because she wanted to hear more about the disabled experience from diverse, everyday folks.
So many times in our culture when we think of disability we think of Christopher Reeves in his wheelchair or Dustin Hoffman acting in Rainman. Much of what we see in our culture’s examples of disability are completely lacking in diversity. Not only that, but the examples are almost always visible, which is simply not always the case. Many are invisible and our society often invalidates them because of this.
Some of my favorite chapters include:
-Harriet McBryde Johnson who has a neuromuscular disease debates with a Princeton professor who believes she shouldn’t have been born.
-Jeremy Woody speaks to the challenges of being deaf in prison.
-Sky Cubacub describes how limited (and honestly ugly) current adaptive clothing is and how they are changing this.
-Keah Brown expresses the happiness and love in her life, even though society tells us that joy is impossible for disabled people.
-Shoshana Kessock, who has bipolar disorder finally gives herself permission to be healthier and take her medicine instead of feeling like she owes the world her manic creativity.
-Britney Wilson describes the perilous journey of NYC’s paratransit service.
This book shows such richness and joy and challenges and life in each person’s story. They are not gloom and doom like we are lead to believe is nonstop for them. It’s important for us to examine the biases we may hold against those that are differently abled.
This powerful book does exactly what the title says. It makes everyday disabled experiences more visible to the world. I cannot recommend this book enough. Please give this a read.
This book contains stories from people with a variety of disabilities: those born with severe physical disabilities, those who became disabled as they grew up, those suffering with mental illness, and those who have both physical and mental illnesses or are neuroatypical.
It covers stories from people with diseases you don't think about much: Lyme disease survivors, EDS, etc., as well as "marathon" diseases such as cystic fibrosis and muscular distrophy.
It's a book of hope and rejoicing in your life, no matter what you have to continue to overcome.
Top reviews from other countries
Split across four sections - Being, Becoming, Doing and Connecting - each contributor leaves a piece of themselves within these pages, their voices distinct and experiences vivid whether they be expressed through ten pages or just three. This diverse range of perspectives, and mediums through which they're shared, makes this anthology a true demonstration of what intersectionality really means without even having to use it as a buzzword. It succeeds absolutely in what it sets out to do; to demonstrate the undeniable value of disabled lives and experiences - particularly those lives and experiences that are also shaped by colour, gender and/or sexuality - and why not only the world will always have us, but why the world needs us. Every essay is accessible - and clearly labelled with content warnings where difficult subjects are discussed - and is worth reading at least once, but I can see myself returning to this anthology to re-read it many times in the coming years.
Whether you're disabled or no, I think this is a critical and necessary read for anyone who is passionate about social justice, or who wants to gain a more intimate understanding of themselves and the human condition. The wisdom and rawness within these pages is something we can all grow from, and may we carry them forward into our communities and from humble seeds grow into mighty oaks, intertwined in interdependence from roots to branches. In my own journey as a young disabled man, I feel as if I'm just starting to reach the canopy, in no small part thanks to the richness of this book.
ところどころ出てくる専門家しか知らないであろう用語が読むペースを乱しがちなのはやむを得ない。