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Babies With Down Syndrome: A New Parents' Guide Paperback – September 19, 2008

4.8 4.8 out of 5 stars 193 ratings

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BABIES WITH DOWN SYNDROME, the compassionate, trustworthy guide which has benefited thousands of families since it was first published in 1985, is completely revised and updated in a new, third edition. Covering the best practices for raising and caring for children with Down syndrome from birth to age five, this book is invaluable to new parents of a baby with Down syndrome. The new edition incorporates updated information on scientific, medical, and educational issues, such as: prenatal testing and gene mapping; links between early behavior and later learning; visual learning styles; the transdisciplinary approach to early intervention, and the latest on special education laws. Parents find excellent practical information on everything from toilet training to using visual supports, as well as dozens of parents’ suggestions and feedback. Many new authors, both parents and professionals, appear in this edition, -- Professor Sue Buckley, Jo Ann Simon,M.S.W., Mary Wilt,R.N. and Len Leshin, M.D., -- and more than ever are parents of children with Down syndrome. Chapter topics include: • What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis • Adjusting to Your Baby: Coping with common emotions and announcing the news to friends and family; • Medical Concerns & Treatments: An overview of possible health issues, including celiac disease, sleep apnea, diabetes, reflux, and skin problems • Daily Care: From breast feeding to hygiene • Family Life: Sibling and Spousal Relationships, Behavior Issues, and Independence • Development & Learning • Early Intervention: An overview of services and therapies for babies & toddlers.• Legal Rights & Financial Issues: Explains your child’s educational and legal rights This comprehensive guide is full of new photos, parent statements, updated and expanded resources and reading lists. It’s everything parents need to build a bright and healthy future for their child with Down syndrome.
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Editorial Reviews

Review

Most Down Syndrome News readers are familiar with an earlier edition of this book, as it is the first book that many new and prospective parents read when they find out their baby has DS. This latest edition keeps the same familiar format: good, factual information mixed with appealing photos and parent statements.

The information throughout has been updated. Half of the chapters have new author experts many of whom are themselves parents of children with DS who know how overwhelming it can be to take in so much new information all at once and they write with a gentle tone.

I remember shedding lots of tears when I read the second edition of this book back in 1996 when Marion was born. It was a very different experience reading this as the mom of an almost (yikes!) 13-year-old. It continues to be a good, positive introduction and a nice refresher for this old-timer. --Down Syndrome News, Volume 31, #7

This book was originally published in 1985 because so little accurate and positive information on Down syndrome was available. Revised for the first time in 13 years and featuring four new chapter authors, it covers information that will be most helpful for families with children from birth to age five. Including the experiences and advice of parents, this should be one of the first books parents read upon receiving their child s diagnosis. The contributors-- educators, medical professionals, adults with Down syndrome, and, primarily, parents of children with Down syndrome--along with editor Skallerup, mother of a child with Down syndrome, define Down syndrome and discuss adjusting to your baby, medical concerns and treatments (for example, 40 to 60 percent have some type of heart defect), daily care, family life, postnatal development, the importance of early intervention, and legal rights and hurdles. Highly recommended for parenting collections in public libraries. --Library Journal, *starred review, October 1, 2008

Most
Down Syndrome News readers are familiar with an earlier edition of this book, as it is the first book that many new and prospective parents read when they find out their baby has DS. This latest edition keeps the same familiar format: good, factual information mixed with appealing photos and parent statements.

The information throughout has been updated. Half of the chapters have new author experts many of whom are themselves parents of children with DS who know how overwhelming it can be to take in so much new information all at once and they write with a gentle tone.

I remember shedding lots of tears when I read the second edition of this book back in 1996 when Marion was born. It was a very different experience reading this as the mom of an almost (yikes!) 13-year-old. It continues to be a good, positive introduction and a nice refresher for this old-timer. --Down Syndrome News, Volume 31, #7

Most
Down Syndrome News readers are familiar with an earlier edition of this book, as it is the first book that many new and prospective parents read when they find out their baby has DS. This latest edition keeps the same familiar format: good, factual information mixed with appealing photos and parent statements.

The information throughout has been updated. Half of the chapters have new author experts many of whom are themselves parents of children with DS who know how overwhelming it can be to take in so much new information all at once and they write with a gentle tone.

I remember shedding lots of tears when I read the second edition of this book back in 1996 when Marion was born. It was a very different experience reading this as the mom of an almost (yikes!) 13-year-old. It continues to be a good, positive introduction and a nice refresher for this old-timer. --Down Syndrome News, Volume 31, #7

About the Author

The contributors are Sue Buckley, Jean Nelson Farley, Marian H. Jarrett, Emily Perl Kingsley, Chahira Kozma, Len Leshin, Mitchell Levitz, Joan B. Riley, Jo Ann Simons, Susan J. Skallerup, Marilyn Trainer, and Mary Wilt. A mix of parents of children and adults, an adult with Down syndrome, advocates, educators, early interventionists, medical professionals, and writers, all are dedicated to helping children with Down syndrome.

Product details

  • ASIN ‏ : ‎ 1890627550
  • Publisher ‏ : ‎ Woodbine House; 3rd edition (September 19, 2008)
  • Language ‏ : ‎ English
  • Paperback ‏ : ‎ 358 pages
  • ISBN-10 ‏ : ‎ 9781890627553
  • ISBN-13 ‏ : ‎ 978-1890627553
  • Item Weight ‏ : ‎ 15.2 ounces
  • Dimensions ‏ : ‎ 5.5 x 1 x 8.5 inches
  • Customer Reviews:
    4.8 4.8 out of 5 stars 193 ratings

Customer reviews

4.8 out of 5 stars
4.8 out of 5
193 global ratings

Top reviews from the United States

Reviewed in the United States on April 23, 2024
Has really good information
Reviewed in the United States on February 1, 2024
I enjoyed the information. Very helpful and I would recommend it to everyone. That has questions or will have questions about down syndrome. Blessed 🙏
Reviewed in the United States on July 25, 2022
As a NICU nurse I found this to be an excellent source of information for Nurses as well as Parents. It is easy to read and understand, well organized and to the point. Non healthcare will think it is negative. But what this does is give facts about what parents will need to deal with as well as how to handle problems . I have recommended it to my NICU Orientees.
Reviewed in the United States on May 25, 2013
i bought this so i could learn more about down syndrome and if there were anythings i could be doing right away besides the basics. i have three children and my youngest 4 months old has down syndrome. i like the book it has alot of good information about down syndrome in easy to understand terms. BUT there is one thing i do not like about this book. i dont like the fact that it says you should give yourself time to grieve... why is anyone grieving for anything... seriously. you gave birth to a preicious little baby so what if your baby has an extra chromosome its not something to grieve. now if you have any child that is born with a life threatening problem then i can see you being upset and sad but if you have a healthy baby with down syndrome then whats the problem. but thats my opinion. my husband and i never once thought for a second why us? why cant we have a typical baby? all we ever thought was we have three perfect children and one just so happens to have down syndrome. and as for being sad when you see a baby the same age as your ds baby doing things your baby cannot do just yet... well guess what my oldest two who do not have down syndrome were completely different my first do everything earlier then average children my second on the other hand did everything at average age or a little old. like my first starting rolling over at 2 months (belly to back) my second was four months exactlly and my baby with down syndrome was four months and six days when he did. all kids are different just give them love patience and teach them and when they are ready they ll do it themselves.
8 people found this helpful
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Reviewed in the United States on January 4, 2017
My husband and I found out our daughter had down syndrome right after she was born. Neither one of us has ever had any real experience with down syndrome babies, or adults for that matter. This book was given to us by a pediatrician at our local children's hospital. It has been super good so far (I'm only about half way through). It's very informative and very practical. I find that, for myself, I have to read it a little at a time though, otherwise I get overwhelmed with all of the information. But I am also a person who over analyzes everything so I probably bring it on myself.
This book has been very helpful for being prepared for what to be thinking about and some things that can be expected, and there are so many sweet pictures of kids with Down Syndrome. It almost makes it a little less of a stressful thing and more of a "this is gonna be ok" thing.
There is also a chapter that is all about the science side of Down Syndrome... that is a REALLY neat chapter. It just shows how science backs up God's creative design, even with something that is considered a genetic disorder. These babies are definitely by design... God's design!!
4 people found this helpful
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Reviewed in the United States on August 27, 2023
This is a very good book for a grandmother of a Down Syndrome child to read!!
One person found this helpful
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Reviewed in the United States on October 19, 2009
If you recently had a child that was diagnosed with Down syndrome, or like myself, had an amniocentesis come back with positive results for a baby with Down syndrome -- BUY THIS BOOK.

There's a lot of information on the internet, but this book not only compiles it together for you in an organized fashion (so you actually retain what you read...) but it also provides humanity. Short snippets at the end of every chapter help you cope with the array of emotions that you will be feeling -- without making you feel bad, dirty or even worse.

The information in this book is amazing. The information itself actually cheered me up and made me realize, "Hey, it's actually NOT that big of a deal." I'm truly indebted to the authors and contributors of this book.

You can find as much information as possible for children and teenagers with Down syndrome -- if you have a child passed the age of 9. This book provides you with information for NEWBORNS, INFANTS, TODDLERS and YOUNG CHILDREN. Again, invaluable.

If you're a family member (grandparent-to-be, or new grandparent) BUY this for yourself as well. There's a lot of teamwork involved in raising a child with Down syndrome, and whilst you may not be the main source of the team... your ability to cooperate with mom and dad's new way of raising this child will help tremendously. There's also a lot of legal issues in regards to the child's future that all grandparents need to know!
21 people found this helpful
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Reviewed in the United States on August 21, 2016
This has been an excellent book for me! I am currently 27 wks pregnant with our son who has been diagnosed with Downs Syndrome. After going through a period of sadness for the first several weeks of learning our news, I was ready to do some research and learn about what to expect in the coming months. I love the way this book is written, as it allows the reader to go through all the emotions that are a part of this emotional journey. It also has been a great source of information thus far.
7 people found this helpful
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Top reviews from other countries

Peterp
5.0 out of 5 stars Good book to have!
Reviewed in Canada on September 15, 2020
Excellent book that provides a lot of helpful information for first time parents. Easy to read and can see myself referencing back to it as needed.
Kosa Daniel
5.0 out of 5 stars Looks good
Reviewed in Japan on April 10, 2019
It came on time and looks great!
Ernie Powell
5.0 out of 5 stars Five Stars
Reviewed in the United Kingdom on January 8, 2016
Excellent book, a great help.
RXC
1.0 out of 5 stars Downs Syndrome American Book
Reviewed in the United Kingdom on April 27, 2011
It's OK - some good info about Downs, but if I'd realised it was American I wouldn't have bought it. I bought it for my nephew, but didn't sent it to him as all the American info is irrelevant.
2 people found this helpful
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